Put Up or Shut Up, Pt. 2

1 Sep
DeQuina Moore: Singer, Actress, Dancer, Author and Amazing Human Being.

DeQuina Moore: Singer, Actress, Dancer, Author and Amazing Human Being.

I have to take a second to brag on my amazing friend, DeQuina Moore. Last week I challenged her to the ALS Ice Bucket Challenge and, rather than pour iced water on her head, she opted to make a donation to ALSA.org. Her friends and family, however, raised their voices in solidarity and finally convinced her to go ahead and make a video.

Even though I know she hated to do it, she finally did the ice bucket challenge tonight, but with her own twist. Rather than make it about ALS (remember, she already donated to them), she chose to bring awareness and donate to the Sickle Cell Disease Association in honor of some of her family members who suffer from the disease.

What is sickle cell disease? That’s a good question. To be honest, I didn’t really know a whole lot about it myself, but isn’t that the point of these videos…? To make people ask questions and do research and learn about these things? So here we go:

According to the Sickle Cell Disease Association of America’s website, Sickle Cell Disease (sometimes called Sickle Cell Anemia) is an inherited blood disease that affects red blood cells. The cells mostly contain an abnormal type of hemoglobin that causes the red blood cells to become sickle-shaped, which makes it difficult for the blood cells to flow through small blood vessels. As we all know, if blood doesn’t get to our body tissue, that tissue doesn’t get oxygen and it becomes damaged.

Sickle cells have a lifespan that is about 1/10 that of normal, healthy blood cells. When those sickle cells are destroyed by the body, it leads to anemia, jaundice and the formation of gallstones. When the blood vessels become clogged or blocked by sickle cells, there can be lung damage, pain in the chest, arms, legs and abdomen, organ damage and it could lead to a stroke. Also, because of sickle cell-related damage to the spleen, the people who suffer from this disease – especially kids – are more prone to bacterial infections.

There are treatments to help with the symptoms, including blood transfusions (which can lead to other issues) that can help reduce the risk of stroke, but there currently is no cure for sickle cell disease.

It is estimated that 70,000 people in the United States suffer from sickle cell disease with approximately 1,000 cases in newborns each year. The life expectancy for patients with sickle cell disease is in the mid-40’s, which is apparently an improvement over what it used to be.

Contrary to popular belief, it does not only affect people of African descent. It is also present in Portuguese, Spanish, French Corsicans, Sardinians, Sicilians, mainland Italians, Greeks, Turks and Cypriots and also appears in Middle Eastern countries and Asia.

So now you – well, we – know. In support of DeQuina and her family, I have made a donation to the SCDAA and hope that you will consider doing the same. I know – a lot of people have been asking for charitable donations lately, but at least consider it and, if nothing else, take the time to educate yourself about this disease.

And, while you’re at it, check out DeQuina’s website. Listen to that glorious voice. Order her book, “Under His Watch: 100 Reasons to Re-Elect & Remember President Barack Obama.” Follow her on Twitter: @DeQuinaMoore. Enjoy this video, which she made out on the road with some of our Flashdance friends. She is one the most beautiful people I’ve ever known, inside and out. See if you don’t fall in love with her, too.

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